Despite being born super early, Madeleine has done a pretty awesome job of being alive. Our little warrior girl came off of her ventilator at a few days old, has been eating like a champ since day one, and has generally just been spending her days being the tiny rock star that she is. We have now learned though, that Madeleine is having some trouble with her brain.
A bleed that occurred in Madeleine’s brain early on resulted in a clot that is now basically clogging up the flow of cerebrospinal fluid in the ventricles of her brain and spine. Her ventricles are increasing in size as a result, and although her little baby head is capable of expanding somewhat to accommodate, she may require surgery if the ventricles continue to dilate. Since she is such a tiny little one (not yet even a kilo), this is super bad news.
On Monday, Madeleine will be having a follow-up head ultrasound to see what is happening, and whether her ventricles are getting larger. Of course, we are hoping that our sweet girl will be able to avoid surgery (or any other invasive procedures). We are trying to be as optimistic as possible, but this is her first major issue, and it feels pretty devastating. We would appreciate your thoughts and prayers for our beautiful girl.